Dysautonomia International: Find a Support Group

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Find a Support Group

We know how valuable it can be for patients and caregivers to connect with others in their own community who are facing similar challenges. That is why Dysautonomia International offers regional support groups led by experienced dysautonomia patient and caregiver volunteers. Our support groups are based on Facebook, but they also host in-person meetings and virtual meet-ups on Zoom, and you can contact them via email even if you are not on Facebook. If you would like to collaborate with Dysautonomia International to start a support group in your area, we'd love to hear from you: info@dysautonomiainternational.org.

Global

POTS is the largest Facebook group for POTS patients and caregivers with over 43,000 members from around the world.

Dysautonomia International College Support Group
college@dysautonomiainternational.org

Dysautonomia International Teen Support Group
teen@dysautonomiainternational.org

Dysautonomia International LGBTQ+ Support Group
lgbtq@dysautonomiainternational.org

Dysautonomia International Black Support Group
black@dysautonomiainternational.org.

Dysautonomia International Men's Support Group
men@dysautonomiainternational.org.

Dysautonomia International Spouse and Signifigant Other Support Group
spouse@dysautonomiainternational.org.

POTS Pals Program - Parents of younger children with POTS and other forms of dysautonomia (age 13 and under) can contact us directly (potspals@dysautonomiainternational.org) to be matched with another parent of a young dysautonomia patient. The parents will be responsible for arranging the communication between their children. Please let us know the children's age, gender and state or country you live in when emailing us. If possible, we will try to match you with the parent of a child of the same age/gender.

POTSibilities Parents

Africa

Dysautonomia International Africa Support Group
africa@dysautonomiainternational.org

South & Central America (Spanish Language Support Group)

Dysautonomia International Grupo Latinoamerica
latino@dysautonomiainternational.org

Australia

Dysautonomia International Australia Support Group
australia@dysautonomiainternational.org

Canada

Dysautonomia International Alberta Support Group
canada@dysautonomiainternational.org

Dysautonomia International Atlantic Provinces Support Group
canada@dysautonomiainternational.org

Dysautonomia International British Columbia Support Group
canada@dysautonomiainternational.org

Dysautonomia International Manitoba Support Group
canada@dysautonomiainternational.org

Dysautonomia International Ontario Support Group
canada@dysautonomiainternational.org

Dysautonomia International Quebec Support Group
canada@dysautonomiainternational.org

Egypt

Egyptian Dysautonomia Support
egypt@dysautonomiainternational.org

India

Dysautonomia International India Support Group
india@dysautonomiainternational.org

Italy

Dysautonomia International Italy Support Group
italy@dysautonomiainternational.org

Puerto Rico

Dysautonomia International Puerto Rico Support Group
puertorico@dysautonomiainternational.org

Romania

Dysautonomia International Romania Support Group
romania@dysautonomiainternational.org

United States

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